I have tried to work a regular full-time job many times in my life. However, with Crohn's I need rest. Working months of 9-5 or whatever does not let me catch up on the rest I need. I need the freedom to take a week off and do nothing when I can, whenever I have an episode. My former employers (most of them) were very understanding, but I would just go downhill, sometimes very fast.
In 2000 one of my doctors told me it was time to retire for good, so I did. Professional bowling is one way I can get out of that trap. If I feel the physical need, I can take a week or two off to recuperate and not fear getting fired. Other people with disabilities have other talents they can perhaps draw on. For a few, permanent disability is the only option.
Something should be done about our disability system. It encourages people to just lay back and do nothing but wallow in self-pity. There is not enough incentive to better yourself and get off the dole. I am not one to advocate government programs, but this is one that is necessary. If the time is invested to assess people's abilities and passions, more people can get off the dollar and get their self-respect back. A bit more spent on training and the like would reduce what is paid out in actual checks. They do have a "ticket to work" program right now, but it is not quite enough.
Finally, those who have no alternative and must stay on disability must be given enough to survive, for what they allot to me does not meet my needs at all.
I hate being on disability, and this is my way out. I am a man of pride and feel I should make my own way in the world. I hope the best for you.
Be well,
Sponge
